data ownership

By Laura Lovett December 11, 2018
A new company called LunaDNA has created an avenue for people to donate their health data in exchange for shares in the company. The novel platform seeks to serve the needs of nonprofit and for-profit researchers as well as everyday people willing to share their health data.  “What we aim to do is create a human health database, inclusive of DNA data, clinical, medical, contextual information....
By Laura Lovett November 28, 2018
Users of the digital health platform Open Health Network are now getting a chance to cash in on their health data with the platform’s new feature, called PatientSphere.  The new feature employs blockchain technology to let patients monetize their health data. The idea is to connect companies or research institutions with folks who fit the criteria they need for different studies or analytics....
By Laura Lovett August 14, 2018
Humans have hacked all sorts of computer systems, but now we are starting to hack ourselves — specifically, our health and biology. “We [are at] the dawn of what I call the neobiological revolution, which I define as the accelerating movement of ways to use technology and biology to alter the human race,” Jane Metcalfe, cofounder of Wired and editor in chief of NEO.LIFE, told Babyforyou.net.ua. “It...
By Jonah Comstock September 9, 2015
In Topol and Kish's formulation, individual health data will feed into big data breakthroughs. "Give me my damn data" has been a refrain among e-patients for many years. But what does it really mean to own data? That's a much larger question that Scripps Health Chief Academic Officer Dr. Eric Topol and Leonard Kish, Topol's co-founder at unpatient.org, have tackled the question in an op-ed...